I had different intentions for this blog but unfortunately this blog has become a go to place for me to document CJ's seizures this year. I pray every day that this season in our life will quickly pass.
Its taken me a while to get to this because the last four weeks have been a whirlwind all starting off with CJ having her worst and longest seizure yet.
My parents drove up from FL to attend my Uncles Funeral in Nc, the morning after they arrived we were up getting ready to make a three hr drive to Hickory and I planned to make a big breakfast before we hit the road. My mom brought out CJ who was awake and asking for G'pa; her little left arm was twitching in a crazy rhythm uncontrollably and I took her from my mothers arms trying to figure out what was going on, she then soon went into a full seizure with just the left side of her body convulsing. We began to time the seizure right away so we could give her the med we were given to stop seizures at five min into the seizure just like instructed. We gave her the med and nothing changed... except panic mode for me... we then called 911 and quickly the ems arrived this time to find CJ still having a seizure; in the past all others had stopped before they arrived. It was heartbreaking to see them rush to put her on a stretcher and take her to the ambulance once there they quickly put an iv in and had her on oxygen and hit the road for the hospital. The EMS was about to give CJ a dose of something "hardcore" to stop the seizure... I could tell he was nervous about giving it to her and he kept telling me what it was and why he needed to give it to her. But seriously, just as he was about to stick the syringe in her she took a deep breath and stopped seizing. This is when I can say I saw the Hand of God in the midst of the storm. There is no telling what further side affects she could have had, like having too much med and going into cardiac arrest. I think back on it now and wonder how I did not loose it and kept it
together; only God gave me the strength and grace to get through this.
It was after 30min that the seizure finally stopped in the ambulance
with no fever at all this time. CJ sleept for a while because her little body was so tired from the seizure but as she started to come around she did not have any control or could not use the left side of her body for a few hrs... The Neurologist afterwords said this is very common, but maybe they should tell you side affects of seizures beforehand so this mom is not freaking out inside! We were admitted to Wake Med Childrens to be observed overnight and then had an MRI run the next day. Most of the rest of the day was a blur of no rest as CJ was on all kinds of monitors, but she did great and loved her nurses and all the attention she was getting, and balloons and coloring books she was getting thanks to family and friends. MRI was clear and after a trip to the Neurologist we have decided to put CJ on some seizure med. in hopes that she will be able to come off the med in a few years when she has outgrown this. The Neurologist did say that we really can not know if this med will even work because we do not know yet what the cause of the seizures are, only time will tell. She is responding well to the med with no crazy side affects. We continually can only put our sweet girl in the Lords hands and ask that He will touch and Heal her.
It was also the Hand of God that my mom was here to care for Micaiah as it was my first time away from him and I did not have to worry over who was caring for him. I am ready for this storm to be over but I know that God is right here with me holding my hand through it.
http://youtu.be/BJi_7f1cpbk
No comments:
Post a Comment